Thursday, November 6, 2008

Roller coaster

Low: Monday, when the hospital used feeding tubes to try to cathaterize my baby while he screamed. please forgive me

High: Obama winning. Brody is safe and will have health insurance. And a president who knows there is a constitution.

Lower: Brody having surgery for something we hadn't even thought was an issue, a stricture in his urethra. please keep him safe and healthy And getting anxious to hear results of how his one kidney is functioning. please let it be working well

Slightly higher: At least he can have solids until 7am, and clear juice until 1pm on Friday. please don't let him think we are being mean to him

Lowest: Just now, found out 2 year old Dante's neuroblastoma cancer has spread. To his spine, and possibly his bone marrow and there are lesions all over his body, including his head. And there's one treatment (MiBG), and if he doesn't get well from a respiratory infection in his lungs (which could also be cancer) within the next 4 days, then there is no treatment.

please please please



I am Mary S. said...

I second your pleases.

I am stunned. Speechless. How is this happening??


SaRaH said...


Anonymous said...

Oh that's terrible for Brody. Hopefully they will be able to correct it and his kidney will be great.

The great thing about 2 year olds is that they love to recreate their memories in play. We have a doll that Benji caths, gives medicine too, pokes, feeds, diapers, and drops (yeah-we have never done that to him but poor Sully gets the brunt of his abuse).

Alina said...

I have that same word going around and around in my head. Please, please,'s so unfair. :(

I hate that you're going through what you're going through, too. Why does it have to be that way? Kids just don't deserve that sort of thing. Hugs to you and especially to Brody.

Christine said...

alina and mary,
that's the thing that i don't understand. the why of it. why dante and why Jo - and she already lost a son? i can't fathom one minute of her life.

My Carousel of Progress said...

Sorry to hear of Brody's urethra/kidney issue. We are certainly praying for him and you guys as well. Very sad news of your friend, it certainly makes no sense why anguish and suffering exist, especially in little children.
Best wishes to your family!

Jacque said...

I hope all is well with Brody.
Another please for little Dante.

pattinase (abbott) said...

YOu are the bravest soul. God or Obama be with you. As much as I pray, I pray for Brody.