Wednesday, March 16, 2011

Searching for grace

I am grateful. For:

Medicine that can help to dissolve blood clots.

Insurance that covers some cost of the medicine.

My mom and stepdad who are helping a great deal with the cost of the medicine.

Miguel, at Walgreen’s Home Infusion, who was kind, calm and thoughtful to a frantic mother when I had almost lost hope of finding a pharmacy that could compound Liam's medicine AND for anticipating our need for a payment plan and approving us without asking.

Erin, the social worker who is applying for grants for us.

My friend Linda who wrote to me, “Liam trusts you...You have to remember that. He loves you no matter what. So if it ends up being you still giving the shots, you can rest assured that he still loves you and trusts you and will always be happy that you comfort him, even if it is you that causes the discomfort in the first place.”

Friends of mine, a large gathering of “online friends” I only know because we happen to have children born in September 2006, generous, supportive, intelligent women I have never met in person, who have created this shop, and are donating all of their creations to sell, and giving us the proceeds to pay for the medicine.
Liam, for his smiling eyes.

Brody, for his overflowing heart.

Jeremy, for insisting on group hugs.

Jo and Alisha for telling me about EMLA cream.

Alina for giving us her gift card to pay for it.

Cathy for showing me what real courage and unending grace look like.

If you told me in March 2010 that in a year, I would have another son, who is basically healthy, smiles all the time, and loves nothing more than being held my me, but that he would have a blood clot on his aorta, and that it would cost us $5,000 to treat, do you know what I would have done? (a) thought that you were insane because it was impossible; and (b) cried tears of joy and wonder at the miracle I was about to be given.

I keep returning to this:

When you walk to the edge of all the light you have

and take that first step into the darkness of the unknown,

you must believe that one of two things will happen:

There will be something solid for you to stand upon,

or, you will be taught how to fly.

~Patrick Overton


Anonymous said...

I wish there was something I could do to help.
My heart hurts for you and your family...

Please feel free to get in touch if there is some way that I can help.

You and yours are in my thoughts and prayers.

Christine said...

Thank you so much. Your post to this blog entry made my heart happy. xoxo Wanna publicize this?

Anonymous said...